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世界自閉癥關(guān)注日:一起來關(guān)注“來自星星的孩子” What is autism spectrum disorder and can it be treated?

中國日報(bào)網(wǎng) 2019-04-02 13:46

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有這樣一群孩子,我們稱他們?yōu)椤靶切堑暮⒆印保t(yī)學(xué)上他們被稱為自閉癥兒童。他們在溝通交流方面似乎有著一套不被常人所理解的來自遙遠(yuǎn)星球的思維模式,好像孤獨(dú)地沉浸在自己的世界里。

今天是“世界自閉癥關(guān)注日”,讓我們一起來關(guān)注“來自星星的孩子”。

August 8 2018 - New York City. Amy Schumer at #BlogHer18 Creators Summit at Pier 17 in New York City. (Credit Image)

Actor Amy Schumer has revealed that her husband, Chris Fischer, has been diagnosed with autism spectrum disorder (ASD).

演員艾米-舒默曾透露她的丈夫克里斯-非舍爾被診斷患有自閉癥。

In an upcoming Netflix special titled Amy Schumer: Growing, the 37-year-old comedian talks openly about her personal life, including her marriage and her husband’s health.

在即將播出的網(wǎng)飛公司特別節(jié)目《艾米-舒默:成長》中,這位37歲的喜劇演員公開談?wù)摿俗约旱乃饺松?,包括婚姻和丈夫的健康?/p>

“I knew from the beginning that my husband’s brain was a little different than mine,” Schumer says in the hour-long stand-up show.

在這段一個(gè)小時(shí)的獨(dú)立脫口秀中,舒默說:“我從最開始就知道我丈夫的思維和我有些不同 ?!?/p>

”My husband was diagnosed with what used to be called Asperger’s. He has an autism spectrum disorder. He’s on the spectrum.”

“我的丈夫被確診患有艾斯伯格癥,這是自閉癥譜系障礙中的一種?!?/p>

The I Feel Pretty actor said there were early signs of the condition when she first started dating Fischer, who she married in 2018.

曾出演《超大號(hào)美人》的舒默說,在最初和菲舍爾約會(huì)的時(shí)候,她就發(fā)現(xiàn)了一些早期跡象。兩人在2018年結(jié)婚。

“Once he was diagnosed, it dawned on me how funny it was, because all of the characteristics that make it clear that he’s on the spectrum are all of the reasons that I fell madly in love with him. That’s the truth,“ she said.

她說:“他確診后,我覺得這太有趣了,因?yàn)樗羞@些特征讓我終于明白,我瘋狂愛上他的原因就是他所表現(xiàn)出來的這些特征。真的是這樣?!?/p>

“He says whatever is on his mind. He keeps it so real. He doesn’t care about social norms or what you expect him to say or do,“ she added.

她補(bǔ)充說:“他想什么就說什么,如此真實(shí)。他不在乎社會(huì)常規(guī),或者別人希望他說什么做什么?!?/p>

Students with autism take a hydrotherapy class at the warm-water pool of the Heep Hong Society, a children's educational and rehabilitation organization in Hong Kong. Provided to China Daily

自閉癥譜系障礙是怎么回事?

Autism is a lifelong developmental disability that affects how people perceive the world and interact with others, the National Autistic Society (NAS) states.

英國自閉癥協(xié)會(huì)稱,自閉癥是終身的發(fā)育障礙,影響人們對(duì)世界的認(rèn)知及與他人的互動(dòng)。

An autistic person experiences their surroundings differently to others which can impact their communication skills and their ability to relate to others.

自閉癥患者感知周圍世界的方式與常人不同,這會(huì)影響到他們的溝通技巧,以及與他人交流的能力。

As the name suggests, autism is a spectrum condition meaning that while all autistic people share certain difficulties, they can experience the condition in different ways.

通過名字可以看出,自閉癥譜系障礙意味著,盡管所有的自閉癥患者都有某種障礙,但他們的狀況又各有不同。

自閉癥有多普遍?

There's is no official count of the number of people who have been diagnosed with autism worldwide. 

全世界有多少人患有自閉癥,目前沒有官方數(shù)據(jù)。

A study published in the Journal of Child Neurology  in 2007 was the first large-scale examination of the prevalence of autism in China. The study found that 1.61% of children under the age of 15 years were receiving some level of services for an autism spectrum disorder.

2007年發(fā)表在《兒童神經(jīng)病學(xué)》期刊的一項(xiàng)研究是中國首個(gè)針對(duì)自閉癥患病率的大規(guī)模研究。該研究發(fā)現(xiàn),15歲以下的青少年中有1.61%的孩子在接受某種程度的自閉癥譜系障礙治療。

There are around 700,000 autistic people in the UK – that’s more than one in 100 people, according to the NAS.

英國自閉癥協(xié)會(huì)稱,英國有大約70萬名自閉癥患者,超過總?cè)丝诘?%。

People from all nationalities and cultural, religious and social backgrounds can be autistic, although it appears to affect more men than women.

來自各種民族、文化背景、信奉不同宗教、擁有不同社會(huì)背景的人們都可能患有自閉癥,但似乎男性比女性患者比例高。

There are a number of theories as to why more men and boys than women and girls get an autism diagnosis, including genetic differences and the idea that that women and girls are better at masking or camouflaging their difficulties.

關(guān)于為何男性和男孩比女性和女孩更容易被診斷為自閉癥有多種理論,包括遺傳學(xué)差異,以及女性和女孩更擅長偽裝和掩飾自身的障礙。

camouflage ['k?m?flɑ??]:vt.偽裝,掩飾

 

自閉癥的癥狀有哪些?

While two people will not experience ASD in the same way as it has a variety of effects. However, there are some uniting factors.

因?yàn)樽蚤]癥有多種癥狀表現(xiàn),所以沒有兩位自閉癥患者的表現(xiàn)會(huì)完全相同,但還是有一些共同點(diǎn)。

In particular, understanding and relating to other people, and taking part in everyday life can be more difficult.

自閉癥患者在理解他人、與他人溝通,以及參與日常生活方面會(huì)更困難。

As a result, people with autism can appear to be insensitive, seek out time alone and behave in a way thought to be socially inappropriate.

因此,自閉癥患者可能看上去感覺遲鈍,總是獨(dú)處,并且行為怪異,不符合社會(huì)常規(guī)。

Autistic people also tend to engage in repetitive behavior and routines. For example, they “may want to always travel the same way to and from school or work, or eat exactly the same food for breakfast”.

自閉癥患者還總是重復(fù)某種行為和活動(dòng),比如,他們“或許總選擇同一路線去上學(xué)或上班,或者早餐總吃同一種食物?!?/p>

Many autistic people also experience over or under-sensitivity to sounds, touch, tastes, smells, light, colors, temperatures or pain.

很多自閉癥患者對(duì)聲音、觸覺、味覺、嗅覺、光、顏色、溫度和痛感過于敏感,或者過于遲鈍。

Autism also affects a person’s cognitive abilities, with around 70 percent of children having a non-verbal IQ of 70 or below, with 100 considered the average.

自閉癥還會(huì)影響人的認(rèn)知能力,大約70%的自閉癥兒童的非語言智商等于或低于70分,正常兒童平均值為100分。

However, Asperger Syndrome, which is a form of autism, is linked with average or above average levels of intelligence.

然而,自閉癥中的艾斯伯格癥候群患者智商等于或高于平均水平。

Children play at the Shijinglong Ski Resort in Yanqing, Beijing, on Jan 21. [Photo/Xinhua]

自閉癥可以治愈嗎?

Autism is a life-long condition and many people see it is an important part of their identity.

自閉癥是終身的發(fā)育障礙,很多人將之視為其自身重要的一部分。

However, there are a number of strategies and behavioral programs that help to enable learning and development which people with autism may find helpful.

不過,也有多種策略和行為計(jì)劃能幫助自閉癥患者學(xué)習(xí)和發(fā)展,對(duì)他們有所幫助。

If your child is autistic, it’s also good idea to find out as much as you can about autism.

如果你的孩子患有自閉癥,搜集盡可能多的自閉癥相關(guān)信息是個(gè)好主意。

 

英國國民健康保險(xiǎn)體系建議大家采取多種干預(yù)措施,幫助孩子發(fā)育,其中包括:

communication skills – such as using pictures, sign language or both to help communicate as speech and language skills can be significantly delayed

溝通技能:比如使用圖片和手語來幫助溝通,因?yàn)樽蚤]癥患者的語言技能發(fā)展可能嚴(yán)重滯后。

social interaction skills – play-based strategies, comic strips and some computer-based interventions can help

社交技能:在玩耍中培養(yǎng)社交技能,閱讀連環(huán)畫,或者一些使用計(jì)算機(jī)開展的干預(yù)措施會(huì)有幫助。

imaginative play skills – such as encouraging pretend play

想象力游戲技能:比如鼓勵(lì)孩子玩角色扮演。

learning skills – such as pre-learning skills to help concentration, reading, writing and maths

學(xué)習(xí)技能:比如預(yù)習(xí)技巧,幫助孩子集中精力、閱讀、寫作和學(xué)習(xí)數(shù)學(xué)。

 

【小知識(shí):“世界自閉癥關(guān)注日”的由來】

2007年12月聯(lián)合國大會(huì)通過決議,從2008年起,將每年的4月2日定為“世界自閉癥關(guān)注日”,以提高人們對(duì)自閉癥和相關(guān)研究與診斷以及自閉癥患者的關(guān)注。

自閉癥,又名自閉癥譜系障礙(ASD),是一類以社會(huì)交往和溝通障礙、狹隘興趣及刻板行為為主要特征的兒童神經(jīng)發(fā)育障礙。此病以男孩多見,男女之比4:1,發(fā)病原因主要為先天性因素,但往往在嬰幼兒期因?yàn)樾袨楫惓?、語言發(fā)育遲緩才引起家長重視,最終到醫(yī)院才作出診斷。目前已成為全球患病人數(shù)增長最快的嚴(yán)重疾病之一。

 

來源:獨(dú)立報(bào)、人民網(wǎng)

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